Hello again, it has been a very long time since my last post. I feel like the last year has been a really amazing roller coaster with many ups and downs and so many highs and lows. We are still fighting the epilepsy monster but it seems like there's another monster that tagged along: pharmaceutical side effects. I watched how my very happy and active daughter was slipping away from me and all that was left was a very drowsy girl who was losing all the abilities and progress she had gained. I remember how sad it was for me to see my Facebook memories everyday because they showed how well Sophia was doing before the poison of the seizure medications she was taking. I didn't realize that it was the meds and not the epilepsy that were causing the regression and kept feeding the side effects by adding new ones and upping the dose of the ones she was already on, I was attacking a monster with another equally evil.
I started thinking really hard, and I mean REALLY hard. It became my full time job to find a way out of this mess, to find an alternative to the reality my poor daughter was living because I was convinced we didn't have to settle for what the western medicine had to offer, there has to be something else that could help bring my daughter back and I was (am) committed to find. So I read a lot about natural medicine and also talked to a couple of people who were willing to share their knowledge with me. I realized that even though Sophia was already taking CBD oil it could only help so much while she was still getting big amounts of pharmaceuticals every day. Also, I paid more attention to what I was feeding her and started switching over processed foods for more home made ones. Then after countless sleepless nights, I made the very hard decision to wean Sophia off the pharmaceuticals. There was a huge conflict in my head because I was going to renounce to what I had been taught to believe growing up and I open my mind to a different way of healing and that is a very scary switch to do.
So the decision was made and knew the new road was going to be a difficult one, too. First it's the weaning process which brings withdrawal symptoms so I made sure to do it in a very slow and safe way. Second, I needed to make sure I gave Sophia an alternative to protect her from getting too many seizures whether that meant more CBD oil or trying different herbs and natural remedies. Lastly, I wanted to make sure I kept offering the most natural and nutritive meals I could to help her body heal and detox from all the bad things she had been getting for 9 years.
It certainly hasn't been easy, not in the least! It has been a constant search for and try different treatments, different herbs and natural remedies. Some work and some not so much, there has been a lot of moments of crisis when I've doubt myself and wonder if I did the right thing in choosing a natural treatment over a pharmaceutical one but even during the crisis I see the old Sophia to come back, she is walking again, she is moving a lot playing on the floor, she is alert and the interaction with other is much better. Comparing my daughter today to who she was two years ago when she was reduced to a rag doll too weak to lift her head, there's no doubt in my heart I made the right thing by giving her a fair chance to be the kid she is was meant to be.
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