It's a learning process for us and for Sophia. She is now letting me maneuver the tube better and so the feedings are not as stressful as they were. We still have a long way to go but I hope that the healing process progresses at a reasonable pace. The little opening is still fresh and needs to be kept as dry as possible. The cleaning is painful for me to do because is obviously painful for her and I can't stand seeing her so uncomfortable, but it needs to be done. We saw our pediatrician and he said it looks ok, but he wants to prevent infection so he asked me to put some antibacterial cream on it. What makes me feel better is that there's a couple of nurses in Sophia's classroom, they have lots of experience with feeding tubes and I'm sure they have ideas on how to make this more bearable for my little girl.
The first day at home I was wondering if we did the right thing, and I have to say that despite the struggles I think in the long run it's going to be so worth it. Now we realized how little fluid Sophia was really taking! We are definitely seeing a lot more wet diapers and that's actually a very good thing. Also having the option of giving her bolus feedings as needed, takes the pressure off of having to push every single bite to make sure she eats the calories she needs, and now we can concentrate on the fine motor skills and independence. So with that in mind, I need to take a deep breath and deal with the healing part of this process knowing that the benefits will definitely compensate the struggles we went through to get there.
What a strong girl Sophia is! |
Sending you a huge hug, Natalia! You are so very strong, as is Sophia. And what a wonderful husband and father Eric is! Sending up prayers for your little family. You've got this, sweetie!
ReplyDeleteThank you so much Dyanne!! for the prayers, the words and the hugs!!
DeleteAmiga:
ReplyDeleteTe envío un fuerte abrazo renovador de energías, te envío todo nuestro amor para nuestra pequeña pero a la vez gigante guerrera Sofia.
De corazón me alegro que todo vaya mejor y espero que cada vez sean las cosas más fáciles para ti y para Sofia.
Un abrazo
Gracias amiguita!
DeleteSending you lots of comforting thoughts and hopes for a speedy recovery! I hope things get easier for you, Natalia! We're all thinking of sweet, strong little Sophia!
ReplyDelete