This girl!

This girl!

Friday, March 13, 2015

Little Miss Independent.

When we learned about Sophia's diagnosis (you can read about it here ), we faced a whole world of uncertainties. Not only the baby we were expecting had a syndrome but it was an unique one. Since there was no literature about it, we didn't (and still don't) know what to expect. We had no idea whether she was going to sit by herself but then one day she did. We didn't know if she was going to crawl on her knees and hands but then she did. Same thing with standing or pulling herself up, and each time it was more than just another milestone.
For most of families, the milestones their kids reach are expected to happen and when they do, it's of course a motive of celebration but then they get ready for the next one. There's nothing wrong with that, that's how I would probably be if my kid was a typical one. But Sophia is a very special kid who does things at her own pace, things are a little harder to do for her; but after three hip surgeries, having low muscle tone and having to wear braces to correct the unusual angle of her feet, I would say she is doing pretty darn good. Sophia works really hard to do the things that other kids do fairly easy so when she reaches her milestones it's a very, very big deal!
My girl is walking! with the help of a walker, yes but walking nevertheless! It is a dream come true and I am happy for myself because she is getting so big and heavy and it's hard to carry her all the time but I am mostly happy for her, her face lights up when she is walking, she realizes she can go places and she gets to be independent, she knows it and she likes it; who wouldn't?!
I don't know if Sophia is going to walk on her own without assistance but I'm not going to think about that because what I want to do right now is to enjoy this moment... every minute of it!

She lets go of the mirror for few seconds at a time

1 comment:

  1. Nata como tu misma dices cada paso y logro que Sofía da es muestra de su independencia y de su capacidad, ella es una niña maravillosa, una guerrera incansable y un ángel del cielo enviado para alegrar nuestras vidas. Estoy segura que la vida no pudo haber escogido mejor mamá para ella, tu entrega y dedicacion son dignas de admirar, al igual que Sofía tu eres una mujer luchadora y un verdadero ejemplo a seguir.